The Home Dipo: K's Newborn Pics

Sunday, December 8, 2013

Our precious little man - not even a day old.

A Little Background

Once upon a time this was a simple family blog. We travelled, we complained about our neurotic dog, we loved, we laughed, we led a picture perfect life. Then along came Miles, the sweetest little boy with a body full of tumors and everything changed. Miles has Tuberous Sclerosis Complex, a rare genetic mutation causing tumors to grow on his vital organs (among other places). His heart tumors left a damaged aortic valve that was replaced when he was 3 weeks old in a complex open heart surgery called the Ross Procedure. His kidneys are full of cysts leading doctors to believe he also has Polycystic Kidney Disease. His brain is littered with tumors which usually cause epilepsy, autism, behavioral disorders, cognitive impairment and so forth... but not always. Our lives and this blog have changed but we are learning that we can still love, we can still laugh and pretty imperfect lives can still be beautifully perfect.

The Home Dipo

Sunday, December 8, 2013

K's Newborn Pics

1 comment:

Castaway Cay

My Son, Vietnam

Celle, Germany

Nova Scotia

Cappadoccia, Turkey

Warsaw, Poland

Costa Rica

Switzerland