Sunday, July 30, 2017

First Birthday Celebration: Team Miles for Miles

On June 24th, 2016 Seattle Children's hospital at long last discharged us. I remember the day was blindingly bright and after being inside the hospital for so long with sleepless nights, poor nutrition and frequent tears my eyes physically hurt as they attempted to adjust to the sunshine. It echoed perfectly how we felt as we tried to look toward the future: overexposed, indistinct and painful; our joy at being released somewhat washed out.

Exactly one year later 60 people joined Miles' team at the Tuberous Sclerosis Alliance's Step Forward to Cure TSC 5k celebrating Miles' incredible year and unifying in a heartfelt and powerful show of support for our family on the journey ahead of us. As it was the year before, the day was cloudless but yet on this day the water reflected Seattle's famously blue skies in a shimmering deep azure, the grass and leaves showed off summery shades of greens and yellows and the bright red superhero capes of those walking on Team Miles for Miles fluttered in the breeze everywhere you looked. The day was clear and beautiful and our hearts were overflowing.


Team Miles for Miles raised $16,470 for the Tuberous Sclerosis Alliance. Friends and family from all over came to our sides and proudly donned their Team Miles for Miles superhero cape. We felt lifted up and empowered by the many of you who donated, walked with us and loved on our little miracle boy. It was an incredibly meaningful and memorable way to celebrate his first birthday and especially how miraculously well he is doing. (See here for a medical update.)







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Special thanks to Christina Servin Photographs for coming to our walk and making our lovely memories stand still. The whole set of pictures, along with some from the TS Alliance photographer can be found here. Also, thanks to Sara Wilson who designed our Miles 4 Miles logo along with creative input from George Bock Jr. We actually had in mind to use a different logo that blended well their ideas, but the silkscreen company we used refused to print them as they thought it was too close to Superman's logo... all I can say is clearly they have never seen Captain America.


My only regret is that we didn't capture a group photo until over half our team had left! But the memory will always be vibrant of our sea of red-caped friends parading through the fields ready to battle alongside our superhero, Miles. 


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