Team Miles for Miles

Our superhero Miles is looking to build his team of sidekicks and backup fighters. Will you be one and fight this battle with us?

A year ago we shared the news of the tumor in our baby’s heart. Since then you have asked us what you could do to help, and we helplessly wondered the same thing. Through meals, kind words, hospital visits, prayers, fasting and cards we've felt supported and never doubted that if we ever found an answer to that question you would be there for us. 

Well, we finally figured out what we can do, and we need your help. The Tuberous Sclerosis Alliance will be holding their Step Forward to Cure Tuberous Sclerosis 5K in Seattle on June 24. This just happens to be the day that Miles got out of the hospital exactly one year before. When we think of how we want to celebrate his first year of life, there is nothing that would mean more to us than walking side by side with Miles’ incredible team of backup fighters as we step forward symbolically and literally on this new path together.

If we're ever going to go big for Miles, now is the time. The Tuberous Sclerosis Alliance believes it is on the brink of some major discoveries and Miles is at the most critical time of his development. Every dollar that can bring these discoveries sooner to our child is going to help tremendously in his fight for the life we thought forever stolen from him and the 730 children born each year around the world with this terrible disease.

Please help by walking with us at 9am in Magnuson Park, Seattle. We can honestly think of nothing more powerful than feeling your strong presence close at our sides as we walk to support Miles as he is but also fight with Miles to find a cure. In addition to walking with us, or if you can't be there, please help us as we make a huge push to fundraise for the Tuberous Sclerosis Alliance. Last year this walk earned only $12,782 and we want to see this year’s walk blow that number out of the park, but we need you. Just as you would for any charity walk or run, you can join our team as a participant and then seek out sponsors; or you can just encourage others to donate directly to Team Miles for Miles.  

Our little superhero wants just a few things for his birthday: better health, a better future, a better fighting chance, and the hope that one day no child will have to endure this battle. That’s one heck of a birthday wish.

Walk Details:

The Step Forward to Cure Tuberous Sclerosis 5K will be held at Magnuson Park in Seattle on June 24, 2017 at 9am. We will be on the 7:55 ferry. Bring your kids and dogs if they can handle other dogs and people of differing abilities. Though you are welcome to run, there will not be official timekeepers. I will happily create you a medal saying it was a record-breaking time if that gets you there with us!

Here is the Seattle Step Forward To Cure TSC home page: http://giving.tsalliance.org/site/TR?fr_id=1455&pg=entry

Here is Miles' Team Page: http://giving.tsalliance.org/goto/miles4miles 


Here is a wonderful summary our photographer friend wrote about Miles that may help in your fundraising efforts: http://www.cservinphotographs.com/blog/2016/11/26/baby-miles

PS I found the TS Walk website a little difficult to navigate and rather frustrating. I would be happy and honored to help you with the sign up and donating process. I also recommend calling the alliance contacts on the Walk's contact page as they are incredibly helpful and quick to respond on the phone.